Turner Syndrome Society Of The United States Announces Ambitious Goal To Crush Ignorance Of Turner Syndrome (TS)

Main Category: Genetics
Article Date: 03 Aug 2009 - 18:00 PST

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The Turner Syndrome Society of the United States (TSSUS) recently concluded its 22nd Annual Conference in Portland, Oregon. The conference drew more than 350 individuals, families, researchers and health care professionals to network and learn about the latest research breakthroughs benefiting women and girls with TS.

TSSUS continues to make great strides toward helping identify and assist those with TS. With that in mind the TSSUS board of directors met and unanimously agreed on setting an ambitious goal to Crush Ignorance of Turner Syndrome over the next decade. The TSSUS board also laid the groundwork for new fundraising, finance and public relations initiatives designed to professionalize the association and increase awareness of TS. One example: a board priority to "ensure that all short girls are evaluated for Turner syndrome will be advanced with a TSSUS produced brochure designed to promote this objective which will be mailed to all pediatricians in the US."

"TSSUS continues to improve TS identification, outreach, and public relations efforts--now more important than ever, given economic conditions, competition for scarce resources, and the current health care reform debate," said Cindy Dunnam, TSSUS executive director.

"In spite of the climate of economic uncertainty the meeting was an economic success. More important was the boards' agreement on a clear direction and purpose for the Society over the next decade," continued Dunnam. "This speaks to the value of what TSSUS offers to those who are interested in helping those with Turner syndrome."

The TSSUS 2010 meeting will be held in Indianapolis, Indiana at the Hyatt Regency, July 2nd-July 4th. See TSSUS' website for more information: http://www.turnersyndrome.org

Turner Syndrome (TS) is a condition that affects only females - more than 75,000 in the United States alone. Main visible feature: short stature, usually below the 5th percentile of height in the female population. Early diagnosis and intervention is critical. If you already know about TS, tell a friend, family member, business associate or health care professional and help us Crush Ignorance of Turner Syndrome! We can't do it without you.

Source
Turner Syndrome Society of the United States