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A newly published survey of nearly 1,000 US women with uterine fibroids shows that fear and lack of knowledge about treatment options may be preventing them from seeking treatment.
Uterine fibroids are common, non-cancerous tumors of the uterine muscle (myometrium) consisting of smooth muscle cells and connective tissue. A woman may have one fibroid or groups of several fibroids, and they can range in size from less than 1 inch to more than 8 inches across.
The study, conducted by leading fibroid experts from the Mayo Clinic, the Cleveland Clinic and the University of North Carolina, sheds new light on the impact, prevalence and treatment concerns related to uterine leiomyomas (fibroids).
The large-scale, racially diverse survey of symptomatic US women aged 29 to 59 - spanning childbearing age to menopause - is the first of its kind.
Dr. Elizabeth A. Stewart, lead author of the study, said:
"Our study shows that women suffer too long before seeking treatment. This can narrow their range of effective options. Women are concerned about missing work and not reaching their career potential due to their symptoms, and they strongly desire noninvasive treatment options that preserve the uterus and fertility."
Uterine ﬁbroids are benign tumors in the uterus, which affect up to 80% of women by the age of 50. They are the leading cause of hysterectomy in the US - nearly half of the 600,000 hysterectomies performed each year in the US are for uterine fibroids and abnormal bleeding.
Hysterectomies involve permanent removal of the uterus, which prevents fibroid recurrence but also results in loss of reproductive potential and many possible side effects, including early menopause and urination and defecation disorders.
Dr. Stewart, Professor of Obstetrics and Gynecology and Chair of the Division of Reproductive Endocrinology at the Mayo Clinic, added:
"Many people are unaware that the vast majority of women will experience uterine fibroids in their lifetime. This condition can cause significant morbidity for those who are symptomatic"
The survey assessed diagnosis, information-seeking behaviors, attitudes about fertility, impact on work and treatment preferences among women living with uterine fibroids for an average of nearly 9 years.
Key findings of the survey include:
Justine Atkinson, Executive Director of Fibroid Relief, said:
"We were alarmed to find that this survey demonstrates a dangerous delay in diagnosis that may unnecessarily advance women's fibroid growth and rob them of less invasive treatment choices."
When presented with treatment descriptions, the majority of women surveyed (60%) rated focused ultrasound as their top treatment choice.
Focused ultrasound treatment, which has been available to US fibroid patients since 2004 and is the first noninvasive treatment option for this condition, uses high intensity sound waves to heat and destroy uterine fibroid cells while leaving surrounding tissue intact. It is an outpatient procedure that involves no incisions and enables many women to return to normal activity in 1 or 2 days.
Other treatment options include hormone therapy and myomectomy where the fibroids are surgically removed from the uterine wall.
A sub-study of 268 African-American women, published in the Journal of Women's Health this month, found that they have more severe symptoms, unique concerns and different information-seeking behavior for ﬁbroids.
Key findings of the sub-study include:
Dr. Linda Bradley, Professor of Surgery at the Cleveland Clinic, said:
"This study has shown us that the burden of uterine ﬁbroids is even more extensive for black women compared to white women than previously reported. In addition, we were alarmed to find that African-American women, despite their far more severe symptoms, report significant delays in seeking treatment compared to white women. The real-world consequences of these findings cannot be ignored."
Medical News Today reported earlier this year that a study from Boston University showed that African-American women who suffered physical or sexual abuse as children were more likely to develop fibroids.Written by Belinda Weber
Copyright: Medical News Today
Not to be reproduced without the permission of Medical News Today.
The impact of uterine leiomyomas: a national survey of affected women; Bijan J. Borah, PhD, Wanda K. Nicholson, MD, MPH Linda Bradley, MD, Elizabeth A. Stewart, MD; American Journal of Obstetrics and Gynecology October 2013. Abstract.
Uterine Fibroid: The Burden Borne by African American Wome; Gloria Richard-Davis; Journal of Women’s Health; October 2013. First page .
Visit our Women's Health / Gynecology category page for the latest news on this subject.
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