MS Society Supports Call For Improved Information Provision, UK

Main Category: Multiple Sclerosis
Also Included In: Mental Health
Article Date: 14 Dec 2007 - 2:00 PDT

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The MS Society has spoken out in support of a call for better care for people with multiple sclerosis (MS) following new research that suggests people with neurological conditions are left in an information void.

Results of the Taking Control survey, published jointly by the Neurological Alliance, the Association of the British Pharmaceutical Industry (ABPI) and Ask About Medicines, highlight how the UK healthcare system is failing people with MS by not ensuring access to appropriate information and specialist advice.

Jayne Spink, Director of Policy and Research at the MS Society, said: "Diagnosis of MS can be a frightening experience, which is why it is vital that people in this position have the information they need.

"It is wrong that people diagnosed with MS are left in the dark about their condition and this is why the MS Society makes information provision a priority."

According to the research, a majority (82%) of the 10million people with neurological conditions in the UK such as multiple sclerosis do not have as much information as they want about their condition.

On top of this, the survey found that four in ten (41%) are not treated with respect by healthcare professionals and less than half (44%) believe they are receiving adequate care.

The MS Society is a member of the Neurological Alliance, which has today joined forces with the ABPI and Ask About Medicines to launch a campaign calling for people with neurological conditions to expect, as a minimum:

- To be treated by health professionals who attach priority to giving information to patients

- To leave the appointment at which they receive their diagnosis with an 'information prescription' including contact details of a relevant patient organisation

- To have a single, well informed and accessible point of contact for on-going information about their condition and treatment.

Dr Richard Tiner, from the ABPI, said: "The effective provision of information is vital for partnership between healthcare professionals and patients - with effects ranging from the psychological benefits of accepting and understanding what is happening to them, to empowering people to actively share in their care.

"The demand for information from people with neurological conditions is high and it is critical that those affected are involved in the management of their condition."

Earlier this year, the MS Society swept the board at the Association of Medical Research Charities' (AMRC) 2007 Science Communication Awards, reinforcing our position as a leading provider of MS research information.

http://www.mssociety.org.uk