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Please note that any comments expressed in these forum posts do not reflect the opinions of Medical News Today in any way at all. Opinions posted in this forum do not constitute medical
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Crohn's Stem Cell In The U.S.
posted by jeannie trujillo on 15 May 2009 at 12:17 pmI suffer from severe Crohn's disease and have had many surgeries. I am 28 years old but was diagnosed at 10 years old. I was hoping to get guidance on the hospital/clinics that have been successful in stem cell treatment. I'm hoping to get some more information to educate myself on the method. I was just told I need another surgery which would leave me w/ a colostomy bag. I just want to explore the option of having an opinion regarding stem cell treatment. Thank you so much in advance!! Jeannie Trujillo
Read the news article that this opinion was posted about:
Stem Cell Treatment For Crohn's Disease
Really Good News!
posted by Thomas Fronmark on 12 Nov 2009 at 12:45 pm
This is really something big! I sure hope that the Stem Cells treatments will mean better lives for people affected by Crohns or other mean diseases!
MY SON WITH SEVERE CROHN'S DISEASE
posted by OLINDA BELLO on 04 Aug 2010 at 11:39 pm
WE WOULD LIKE TO TAKE THE OPTION ON THE STEM CELL TREATMENT FOR THE CROHN'S DISEASE. MY SON IS SUFFERING FROM THIS ILLNESS SINCE 2001, ALMOS 10 YEARS, AT THE PRESEN TIME HE IS 23 YEARS OLD, AND AT THIS TIME HE IS IN A CRITICAL CONDITION WHICH HE NEEDS A BLOOD TRANSFUSION EVERY MONTHS.
PLEASE HELPS US ON THIS HORRIBLE SITUATION
THANK YOU!!!
OLINDA BELLO
address or email og Dr.Julian Panes
posted by nab on 07 Oct 2010 at 9:50 pm
Hi
Can any body guide me on how to get hold of the department of gastroeneterology in Barcelona Hospital clinic
her mom
posted by Joan on 21 Oct 2010 at 11:55 pm
http://spain.a-hospital.com/hospital/hospital-clinic-de-barcelona.html
Here is the google map of it, I think, maybe you could get a group together and get this cure figured out for theses poor suffering people. CCFA and/or Mayo clinic should be doing it here, right?
Help!
posted by Lou Ann Wolf on 11 Feb 2011 at 8:57 pm
I've had Crohn's disease 32 Years and over the years many surgeries and failed medication treatments now suffer with partial blockage and fear of surgery with only 6 feet of small bowel left bowel transplant or possible this any info greatly appreciated??
Cell Transplant
posted by Elaine Gessner on 11 Oct 2011 at 3:58 pm
I am wondering if this therapy is being done in the United States. My nephew is in very bad shape and would be agreeable to any treatment. Please advise me of any information you have.
great news
posted by JamilSaeed on 27 Oct 2011 at 4:13 pm
This is great news which encourages a positive
Outlook , any more information on availability would be good
Stem cell therapy for crohns
posted by Hemant Pangtey on 24 Nov 2011 at 10:40 pm
Dear Moderator
My partner has been suffering from Crohns disease since last 10 years and has already undergone 8 operations for the frequent strictures she had.Since the quality of treatment available in Armenia is not standardized the only options the doctors offer is surgery.
With all the resection done so far no more is possible without colostomy.
I am a medical doctor working with an humanitarian INGO in a remote place with modest means and have supported with the all finances I could spare. She is currently in Germany with the help of Red cross and not sure what treatment is being planned for her.
My query is - how much it will cost for stem cell therapy for her as she seems to be the ideal candidate for her and how long she will need to stay in the hospital.
Thanks in advance.
Dr Hemant Pangtey , Sukhum, Abkhazia
I had peritonitis and went into anaphylactic shock
posted by Nancy on 25 Dec 2011 at 12:50 pm
I am so glad to be alive today! On 12/8/11 I went into the hospital to have a stricture removed; on 12/10/11, I had emergency surgery to save my life; I had peritonitis and went into anaphylactic shock. After 5 days in ICU and another 4 days in the hopital, I was released 12/19/11. PLEASE HELP! I am terrified of 'the next time'. I've had Crohn's for 30 years and it is most definitely getting worse. Are there any doctors here in the western US that can help me?
Persistent active Crohn's disease
posted by B Rowe on 04 Jan 2012 at 5:15 am
31 year old female
Diagnosed Crohn's disease 2000
Ileal cecal resection 2007
Intolerant to 6-MP , Azathioprine ,
Sensitve to systemic steroids
Unresponsive to methotrexate
Two episodes of severe systemic sepsis following inliximab/remicade
Would like to try for children in the next five years, would prefer any clinical treatment before more surgery.
Open to new research options and understands risks involved.
Has Any One Had This Done Yet?
posted by Terri on 13 Jan 2012 at 5:57 am
im 25 year old femail and have had crohns for ten years.
i also suffer from other thing due to my crohns.
i am currently well-ish but am looking for some more information on stem cell treatment it sound very interesting. has any one had it done yet that could share their experiance??
Like B Rowe i am intolerant to 6-MP , Azathioprine and inliximab/remicade along with a few others i found methotrexate and humira injections didnt work for me on their own but together they have been great.
Very dangerous
posted by Lisa Cote on 21 Feb 2012 at 3:24 pm
I have heard about this stem cell treatment before at the IBD conference here in Seattle, and it was described as a very dangerous procedure that is only being used in cases where it is the only hope for surviving. From what I understand, the reason is that they have to basically strip and re-set your entire immune system, which leaves those who undergo this treatment extremely vulnerable to deadly infections. The article hints at this by stating the treatment is only given to those who do not respond to other therapies, but I think it the point should be clarified further so as not to be misleading--this is not yet a safe treatment for a large portion of us with IBD. I have had Crohn's for twenty years now and am doing well currently on Humira and Imuran. I feel blessed to have not required surgery thus far, knock on wood.
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