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Had Guillian Barre Syndrome In 2000, Should I Get A Flu Shot This Year
posted by Lisa Barrett on 23 Oct 2009 at 2:55 amI got guillian barre syndrome in 2000, after a flu shot. I have not taken a flu shot since. Now my medical doctor and my neurologist want me to take a flu shot this year. I don't know what to do. Please help me make a decision.
Read the news article that this opinion was posted about:
What Is Guillain-Barre Syndrome? What Causes Guillain-Barre Syndrome?
GBS & flu shots
posted by Portia on 21 Oct 2010 at 5:28 pm
I was diagnosed Nov 2009 with GBS I have spent the last 11 months in a living hell. I did received the $50,000.00 worth of the Immumoglobulin & 15 days in the hospital and it really did not do much of any difference at first. my doctor told me "NOT"" to take any kind of flu shots, or any other kind of injections-vacanations for 1 year. will it is Oct 21,2010. It seems the light just turned on in my life again and now I am able to cope with daily issues, carry on a reasonable conversation, drive my car, walk with little assistance, and number of other things that I have be UNABLE to do the past 11 months. I still have muscle weakness in left foot & leg also tingling in left hand. but thru the works of medication & the grace of God I have started to see an improvment in my health and keep giving it my all every day so don't give up. I almost did and thought I would die any day just think how that effects your life for 11 months. My wonderful boyfriend has taken care of me thru out this whole time and without him I am sure I would have died or at least been in a nursing home at the age of 55 yrs. as I couldn't remember to eat, cook, shower, or anything alone I would forget the stove was on, I couldn't drive I would get lost and couldn't remember where I parked the park car or even complete a full sentence without repeating it half way thru. some of this was due to the 60 mg morphine I was on 3 times a day for the pain I am sure. But that has all be cut down to 1/2 the amount and using a cpap machine every night for the past 30 days has saved my life.so just hang in there never give up,you will see a change
Guillain-Barré syndrome curable?
posted by edilene on 01 Nov 2010 at 4:14 pm
I wonder if Guillain-Barre syndrome can be cured and whether the patient has fully recovered, or is sequels, I have a cousin that with all the symptoms of the disease and so far have not discovered what he has.
Have a clinic or a doctor specializing in this type of disease?
I would get a response because it's getting worse every day.
How to prevent reoccurance?
posted by Jatin on 29 Nov 2010 at 4:32 am
Dear You,
Please let me know how to prevent reoccurance of GBS.
Regards,
Jatin
safeguard from gbs
posted by kamakshi raturi on 03 Feb 2011 at 11:45 pm
Good after noon sir,
Please tell me the safeguard of gbs and how can I protect myself from this diseases
Guillain barre syndrome curable?
posted by Leilani on 19 Aug 2011 at 6:45 am
I am 10 months out of onset of this disease (oct 2010). My neurologist started me on immuniogobulin treatment before he knew for sure what I had. Other doctors who were with me in hospital did not always agree. Spinal tap does not show protein until tenth day. Mine was done 5th day. He knew immunioglobulin wouldn't hurt me if it wasn't what I had. All I know is the more you mess around not being treated - the worse the complications...and the longer you are in recovery mode. Have cousin get a new neurologist.
My best information for Guillain-Barré syndrome!!!
posted by Holly on 08 Oct 2011 at 4:30 am
My mom has "GBS"(Guillain barre syndrome)and has been in the hospital now for 3 weeks and will be in there for another 2 or 3 weeks. She started off with a pain in her neck which she went to see her family doctor for. While in the waiting room of the doctors she got up off the chair to walk into the doctors office, took 2 or 3 steps and then her legs got week and she passed out. Immediately her doctor called an ambulance to take her to emergency at the hospital. About an hour after arriving at Emergency, the right side of her face was paralyzed and about an hour after her hands got numb and tingly and then between every half hour to an hour the same thing started happening to a another part of her body and then another part and so on until her whole body was completely was paralyzed and tingling. Her legs got week and she has and still is occasionally collapsing, fainting, her whole body is shaking like someone with Turrets.
From what I gather from her doctors is that "GBS" attacks the plasma (The protective tissue covering on your nerve "wires") which slowly strips away the Plasma which then eventually leaves your nerve wires exposed which then causes the numbness and tingling which eventually may or may not cause the patient to become paralyzed (temporally). There is no known "CURE" for "GBS" but there are different ways to stop "GBS" from progressing. 1: Is injections of a medicine 3 times a day (Sorry can't tell you what the medicine is because I don't know myself LOL!!!), 2: Is to take cleaned plasma donated by someone else and inject that into the persons body through an intervenes attached to a filtering machine (Similar to someone getting treated for Cancer) once a day for so many days. Or 3: The doctor will take the patients own plasma through an intervenes attached to a filtering machine which will take out the plasma, run it through the filtering machine and then return it back to your body. All these different treatments are not a cure because right now there isn't any cure according to my mother's doctors but one of theses treatments can stop the progression in a patient with "GBS" Also my mom's doctor said that there are three different categories of patients with "GBS".
There is the one third that get this disease will recover completely and fully like they never had "GBS" and will never get it again, then there is one third that will partly recover, then there is another one third that will "NEVER" recover and will have it for the rest of their lives. (To those of you that have it I pray that you are all in the first one third and recover completely and fully and never get it again. I mean that sincerely)!!! Anyway that is all I know about the "GBS" Syndrome from my experience with my mother and her doctors at the hospital. I hope this helps everyone. Good luck to all that has the STUPID!!! Guillain barre syndrome!!! I really hope that those of you that have it are all in the first one third catagory and that you all recover fast and completely and fully. Take care all and I wish you all the best!!!
Is Guillaine Barre-Syndrome hereditery?
posted by Leonard Chrisjohn on 27 Oct 2011 at 11:19 am
I was told that this disease was hereditary.If so, does it skip one generation.
Guillain-Barre Syndrome - Similar Symptoms
posted by Muwa on 26 Dec 2011 at 12:34 pm
over the last one year i hav bn experiencing problems similar to the mentioned. I feel general weakness in the whole body. My legs and arms feel weak and sometimes they go numb. I have severe headache which forced me to do a brain ct scan but it was normal. I also experience chest pain and back ache. Doctors are unable to detect what am sufferinfg from.plz assist me cause am living a miserable life full of pain and discomfort.
Learned to live with it
posted by Chandli on 08 Feb 2012 at 10:25 pm
I was struck with GBS in 2007 and was not diagnosed with GBS until 2010. I have the tingling and burning sensation since then and at times it really bothers me. I felt I was getting better for three years and after I have not felt improvement. At this point I feel lucky I don't look handicapped and don't need any assistance. However I am hopeful for a cure one day, but for now I have learned to live with it. =(
GB Syndrome poisoning treatment
posted by Dr rajesh kumar katiyar on 02 Mar 2012 at 10:24 pm
Sir
Iam having a pt. who has taken Alpha methrin 10% . pt is concious oriented all 4 limbs are weak with resp muscles involved, on ventilator. Iam managing pt as per literature guidelines. I WOULD LIKE TO KNOW ABOUT ROLE OF IMMUNOGLOBULINS.
GBS
posted by angel on 12 Apr 2012 at 2:57 am
i was diagnost in 1993 with gbs i was only 15 yrs old then i am now 34 yrs old and i am still not able to walk i was never told why i got the gbs i have had a rough live.it relapsed on me 16 times with in the first two years thats why i cant walk..
Guillain-Barre Syndrome Information
posted by neighbor on 18 May 2012 at 8:22 pm
thank you for giving input on this horrible syndrome, a friend of mine was just diagnosed with GBS. i hurt for her so much and didn't know and dont know how to help her, but thanks for all the comments. it happens just like they said, numbness, tinglking, weakness, up to and through your body until (within approximately 1 day)you are paralyzed from neck down. My neighbor has less than 1 week behind her and i see and research has said it will be a long long process for her. whe is very healthy and was raised in the country, she is approx 64 yrs old. Howcan i help her?
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