My sister!!

I know what this is and how it feels to have it done to someone very close to you. My sister has epilepsy and I've saved her life twice from seizures. They are very scary and I can't stand to see her have them but I am always here for her and will be here anytime she needs me. Don't make fun of epilepsy because its nothing to joke around about because it is something SERIOUS!!

Read the news article that this opinion was posted about:
What Is Epilepsy? What Causes Epilepsy?

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Epilepsy sucks

posted by jess on 17 Oct 2010 at 8:52 pm

I know what you mean Sasi I am 16 I all so have epilepsy I take pills every day I got a lot better but I still black out people will talk to me and I won’t hear a word some people get mad at me because of it sometimes even my own family. So yak your right it does mess with your life...I have all types of epilepsy is what my dr. told me...my life has changed since then...when I was about 10 I started to have them but I didn’t not what was wrong with me so I told no one and it only got worse tell about 2 years ago it got really bad all I reamer is waking up in the hospital...if I could turn back time I would tell someone maybe then it would not be this bad...and I can’t see why people make fun of it..It’s not something to laugh at

So ya I understand what ur going through and yes more should understand or at the very least try

:)

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DAAAAANG!!!!!!!!!!!

posted by Danielle on 25 Oct 2010 at 2:23 am

I'm 19 now & I was diagnosed with Epilepsy when I was about 8 years old. When I was 7, I had what was called a "Sty" or a "Chelasian" or however you spell it on my Right Eye & I had surgery to get it removed & a few weeks later I started having Petitmal Seizures in my Left Temporal Lobe. My doctor told me the Anesthesia they gave me to put me to sleep probably "woke it up" because I was most likely born with it. A few years ago when they took me off of my medicine, I had a Grandmal Seizure at church after choir practice. I woke up in the hospital about 1 hour later & found out I lost about 45 minutes of my memory, I had the WORST HEADACHE OF MY LIFE!!!!! From hitting my head on the ground for about 15 seconds felt like I hit my head against a brick wall a million times!! The only thing I remember from that night is my friend threw a football at my head! (Thats not what caused the seizure). And waking up in the ambulance with a bunch of people starring at me with a cute ER Technician testing my Glucose Levels, hahaha!! As well as my mom running into the Emergency Room crying & me begging the nurse to not make me stay the night because the hospital bed was so uncomfortable!! Before I read this article & reviews, I never really realized how serious it was until now. Whenever somebody would joke around about seizures I thought it was kind of funny & I would laugh but, now I realize that its NOT funny AT ALL!! It changed my life completely!! Socially, Emotionally, Mentally, Physically, in pretty much every way possible.

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Seizures

posted by Nickolette on 19 Jan 2011 at 10:06 pm

I am 16 years old, 11th grade. I just got told a couple days ago I have Epilepsy, my body is in constant pain, my headaches are constant every single day.

People really don't understand how this affects us, epilepsy isn't only about having seizures it's the pain we are feeling everyday, up to that seizure. The tastes in my mouth are very different now, I space out all the time. In class I can't even pay attention, I can't learn anything new. It slips my mind. My body makes jerking moves, I can't control. It's horrible.

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boyfriend (:

posted by ashlee on 07 Mar 2011 at 10:35 pm

my boyfriend has had epilepsy since he was 8 and i have been going out with hin for a year now (: i've never seen him have a seisure but i come to the hostpital when he does, he has a really rare type where his heart stops after his seisure everytime.

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my experience with epilepsy...

posted by Celisse on 12 Mar 2011 at 7:45 pm

I had my first seizure when I was 5 & I'm 26 now. I take Depakote 3x/day which completely controls it, so I'm able to do normal things like hold a job, drive a car,etc. When I've had seizures, they only come on after a long time as Grand Mals & I can feel them coming on. When they do I can actually remember a little bit of what happened, where I was or what I was doing beforehand, but I black out during the seizures then wake up later in a confused state. The doctors determined early on my seizures are brought on by extensive exposure to flashing lights, when not controlled. I was put on almost every medication in the book, until I was 14 when my neurologist discovered how well Depakote worked. Unfortunately, he led me on to believe by the time I was old enough to want a family, I more than likely would be unable to because of the potency of the meds. Even though it's not recommended that you get pregnant when you have epilepsy, don't ever believe a doctor who tells you that you can't or won't...

I've been pregnant 4 times, gave birth to 1 girl & 2 boys 3 years in a row naturally; no c-sections or drugs. The 4th I had to terminate early because it started to have a serious affect on my everyday health. All of my kids were born healthy & still are, so I consider that a blessing. The only problem is that when your pregnant, you can't take Depakote/seizure meds because its so strong it could affect a developing fetus. I can go a minimum of 3 months, max 8 months w/o a seizure when I'm pregnant. I've heard of a few cases where women who've had a baby end up being sort of "cured" of their epilepsy disorder after. Considering childbirth can be stressful on the body & seizures can be brought on by stress, I'm wondering how exactly that happened for them, but I myself still have epilepsy today, so...

I hope at some point in my lifetime they find a cure. Several years ago, I made up my mind that I wasn't going to allow my having epilepsy to determine where I'd go in life. Perhaps the fact that I take medication that completely controls it is a positive, but a real cure would be nice. I think compared to the thousands of other disorders, diseases & sicknesses out there, you would think it would be a fairly easy thing to find a cure for. I know they have a surgery procedure, but I personally was never cleared to receive that one...

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life with epilepsy

posted by Danielle on 04 Apr 2011 at 12:30 pm

Im 14 and got diagnosed with epilepsy on the first day of secondary school 1 and a half years ago. Ive beeen in and out of hospital getting x-rays and eeg's.I take 4 kepra and 1 lamictal morning and night. Oh yeah nad i take a folic acis. I dont know has anyone else had Mary King in Temple Street Dublin but shes great. I dont think anyone understands epilepsy until they get it. I cant stay up all night with my friends on sleepovers and go out late to parties. During school, i get really dizzy sometimes but no one really notices. Ive had about 6 seizures in school . The last one was last monday where i was rushe dto hospital over night because people thought I had a concussion.

EPILEPSY IS NOT A JOKE, ALL THOSE PEOPLE WHO THINK IT US. YOU WWOULDNT LAST A DAY !!!!

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Believe in Yourself...Complaining Doesn't Cure Anything

posted by Kate on 01 July 2011 at 7:19 pm

Are you convulsing? Sometimes. Are you dying? No.
There are worse things. Unless you go into clusters (which I have before) and don't stop convulsing, usually there are precautions to take with this condition. Lots may not know the cause of their epilepsy (the cause of mine was never identified either) But, we do know precautions we can take.

I was diagnosed when I was 4 years old. I am now 25. I went through many drug trials, switched neurologists, and had brain mapping when I was 15. I was out of school a lot when I was younger then months when I was in high school. I was embarrassed that my long brown hair was buzzed off and depressed that my epilepsy was not able to be cured.

It's not a joke. And unfortunately a lot of people don't know much about it or have a bad image of the condition. But, that doesn't mean we should be feeling sorry for ourselves. Lots of things have gone not so desirable in my life, but I believe that if I didn't go through all of it I wouldn't be the stronger person I am today. I recognize and have appreciation so much that I am always volunteering and tutoring. My first job after college was caring for adults with MRDD and now I am studying chemistry, pre-med. Don't give up before you try, it took me 20 years to believe that.

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What happens in a PET scan

posted by angela on 10 Oct 2011 at 7:03 pm

I just had an MRI done. Now the doctor wants to to a PET scan on me to see if I am a candidate for surgery. What exactly is done in a PET scan?

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Seizures

posted by Rachelle on 09 Jan 2012 at 11:10 pm

I thought I was the only one that felt the way many of you feel..I am a 17 year old I got diagnosed wit epilepsy 1year ago....It truly is a horrible feeling waking up not knowing what has happen..all you see is your family crying over you...in a year I have had 6 seziures.. I am currently taking kepra 4 pills every morning & night....I agree people really don't know what it is until your diagnosed with it or someone you love is diagnosed wit epilepsy..Epilepsy is not a joke..it is not something people should make fun of...it is serious...

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my mom

posted by emily on 29 Jan 2012 at 7:36 pm

hi, I'm 13 and my mom is an epileptic. Ive seen her have siezures and its really scary! they only last around 20 sec though. she's been living with it since she was in my age.she has a pace maker that helps her heart rate I think. she is completely healthy besides her epilepy. she works as a teacher and if you see her, you wouldnt even know she has it! I have one question, is it likely ill get epilepsy since my mom has it?

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i have epilepsy

posted by janie on 21 Mar 2012 at 6:56 am

i'm 40 yrs old i am sick with seisures every monthh my family don't know what to so some want to hold me while i go threw a seisure they just don;t know whaty they are to do and i tried tto get sopcial security they havent gotten back to me i tried to work my dr said no more

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what can i do to stop a my seizures?

posted by jean on 10 May 2012 at 11:07 am

i had my first seizure when i was five years old, and it was so bad i had to go to the hospital and stay for like a week just to make sure i can be ready and healthy to leave the hospital. but ever since ive had seizures since i was born they been getting worse and worse. ive been having three or four a week, i even have them in my sleep so when i wake up im actually having one, its scary as hell. thats why i never get to leave the house, i cant even go to the store at all because of my condition. so what can i do stop this? well on april 2nd, 2012 i had surgery in bostons childrens hospital and they had to cut my chest and put in like a seizure box that the wire connects to my vains and to my brain. and it came with a magnet bracelate so whenever i have a seizure all my parents have to do is slide the magnet bracelate on my chest and it slows down the seizure so you wont have a full one. but ever since i had that surgery,i have not had seizures at all. so people dont just wait, go to boston and have that surgery, trust me it will help you like really help you. you will have seizures but not like everyday, it will only be one of those little tiny 1 minute seizure that you dont have to go to the hospital, all will happen is you will just fall asleep. thank you and i pray and love for the people who has epilepsy/ seizures. bye.

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