Why Is Breast Cancer Burden Unevenly Distributed Across Various Ethnic Groups, Forthcoming Study
Main Category: Breast CancerArticle Date: 21 Mar 2008 - 1:00 PDT
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It has been said that cancer doesn't discriminate. Sadly, that is not always the case when it comes to cancer care. In an effort to educate and inform both the public and medical community, the Northern California Cancer Center is conducting the Equality in Breast Cancer Care Study to learn more about how women from diverse cultural and ethnic backgrounds go through the experience of being diagnosed and treated for breast cancer.
"We are very excited to have the opportunity to conduct this novel inquiry into why disparities exist among certain groups of women diagnosed with breast cancer," said Dr. Scarlett Lin Gomez of the Northern California Cancer Center. "We hope that our findings will ultimately help to improve how cancer treatment is given in various populations and to help ensure that all women, regardless of race, language, income or any other factors, have an equal opportunity for treatment."
Dr. Gomez -- the recipient of a BC06 Idea award from the Department of Defense -- and her team at the Northern California Cancer Center hypothesize that racial and ethnic disparities arise from differing experiences with health care delivery systems and within women's neighborhood environments. Based on this hypothesis, the Equality in Breast Cancer Care Study has been conceived.
The study focuses on four major racial/ethnic groups -- Whites, African-Americans, Hispanics, and Asians/Pacific Islanders - and is comprised of two components: developmental and application. The developmental component uses focus groups and qualitative research, with open-ended questioning, to develop an instrument appropriate for measuring differences in cancer care among breast cancer patients. In the application component, Dr. Gomez and her team will conduct an epidemiological study to interview 1139 breast cancer patients. The data will be combined with geographic neighborhood data about residential segregation and the social and built environment. All participants will be randomly selected and recruited through the Greater Bay Area Cancer Registry. The study is funded by the U.S. Department of Defense Breast Cancer Research Program, which receives some of its proceeds from breast cancer research postage stamps.
About the Northern California Cancer Center
The Northern California Cancer Center is a nationally recognized leader in understanding the causes and prevention of cancer and in improving the quality of life for individuals living with cancer. The organization has been working with scientists, educators, patients, clinicians, and community leaders since 1974. NCCC is a 501(c)(3) nonprofit with 145 employees and a $15 million operating budget.
www.nccc.org
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I Thnk They're Missing The Boat On This Study
posted by Gail Perry on 21 Mar 2008 at 6:36 amI don't think the issue is what your socio-economic status is, nor where you live.
It is simply, how much money you have for medical care.
My health insurance was canceled about a year before I was diagnosed with breast cancer. I was able to afford a really good surgeon. He removed all the lymph nodes, and they were all dissected. i paid for every penny of that.
Because I had a highly experienced surgeon, there has never been a hint of lymphodema in that arm and I actually have wider range of motion in that arm than the other one. I have been able to afford the best after care possible. I was able to insist on the chemo that was right for me, which included Taxotere every week instead of Taxol every two weeks, because I had the cash to pay for it.
I have had every possible advantage -- because I could pay for it. People who live in disadvantaged neighborhoods may have good health insurance. I really don't know what would have happened to me if I hadn't had the IRA I had, because my retirement income was *just* too high for all sorts of help, from free drugs to help from Komen. The only thing a medical social worker was able to do for me was negotiate a discounted rate with the oncologists. The surgeon negotiated a discounted rate with the hospital for the surgery, but they then changed their minds and billed me for 300% more than they had agreed to charge. I was under great stress at the time and it did not occur to me to get the price in writing. I trusted them. In fact it was a challenge to find a hospital the surgeon was aligned with who would do the surgery. I had to pay in advance, and their concern was that if something went wrong I wouldn't have paid in advance for that.
It isn't about what your background is, or where you live. It is, quite simply, about whether you have good health insurance or not.
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