National Referral System for CJD in UK

Main Category: CJD / vCJD / Mad Cow Disease
Article Date: 27 Jul 2004 - 0:00 PDT

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From July 2004, a new national reporting system was announced by the Chief Medical Officer. This is centred on the National CJD Reporting Form to be faxed, by the notifying clinician, to the National Creutzfeldt-Jakob Disease Surveillance Unit (NCJDSU), the National Prion Clinic (NPC) and the local CCDC. The National CJD Reporting Form and associated documents are available at the links shown below.

This system does not preclude the possibility of a clinician informally discussing a suspect or doubtful case with the NCJDSU or the NPC. The NCJDSU are very happy to discuss cases and provide clinical and other advice concerning potential cases of CJD. The NCJDSU continues to provide a national CSF 14-3-3 service and will arrange courier collection of CSF samples and prompt results.

Annex A: National CJD Reporting Form

Annex B: Patient Information Leaflet

Annex C: Roles and Responsibilities for reporting, surveillance diagnosis and care of patients with CJD

Annex D: Contact details

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