Millions Of People With Musculoskeletal Conditions At Risk Of Being Let Down By NHS
Main Category: Arthritis / RheumatologyArticle Date: 10 Jul 2009 - 1:00 PDT
One-in-five (21%) primary care trusts (PCTs) do not offer 'clinical assessment and treatment services' (CATS) for people with musculoskeletal conditions, denying them services deemed a 'keystone' of the government's 2006 musculoskeletal services strategy1. A report based on Freedom of Information requests and published by the Arthritis and Musculoskeletal Alliance (ARMA) also reveals that just under half (45%) of PCTs do not define life-long conditions such as arthritis as 'long-term', meaning people with musculoskeletal conditions are being ignored in large areas of the country1.
"The millions of people with musculoskeletal conditions in the UK have long been forced to endure low standards of care from the NHS," said report lead Professor David Marsh, Consultant Orthopaedic Surgeon, Royal National Orthopaedics Hospital. "The government has long recognised that the situation must improve and its 2006 strategy should have been the starting point of the process, but people in many areas are still receiving patchy and poor care."
The report - supported by an initial grant from the British Society of Rheumatology as well as Roche Products Ltd and DePuy UK - also confirms the huge variation in spending on people with musculoskeletal conditions, ranging from under £100 per head in Lewisham PCT to almost £1,400 per head in Western Cheshire PCT1. To address these variations the report calls for the appointment of a 'tsar', to oversee improvements for people at a national level, and lead on revamping the Department of Health's own musculoskeletal reform strategy.
"Long-standing musculoskeletal conditions are a major cause of long-term disability, ill-health and ultimately the inability to work," said Ros Meek, Director of ARMA. "It is truly appalling to find so many serious failings in the identification and management of these conditions across the country. We want to see real leadership from the Department of Health in rectifying this, starting with a new plan for better care. The people living with these conditions deserve not to be ignored."
'Musculoskeletal conditions' is a term which encompasses around 200 different problems affecting the muscles, joints and skeleton2. Over 9.6 million adults, and around 12,000 children, have a musculoskeletal condition in England today2. These conditions impose a huge burden on the country with NHS costs in 2006-7 totalling over £3.5 billion3 and 11.2 million working days lost per annum on average over the last three years4.
The development and distribution of this press release was sponsored by Roche Products Ltd.
Arthritis and Musculoskeletal Alliance (ARMA)
ARMA, a registered charity, is the umbrella organisation for the UK musculoskeletal community, bringing together 36 patient / user and professional organisations campaigning for better services for people living with musculoskeletal conditions. The member organisations of ARMA are:
- Arthritis Care
- Arthritis Research Campaign (ARC)
- BackCare
- Birmingham Arthritis Resource Centre
- British Chiropractic Association
- British Health Professionals in Rheumatology
- British Institute of Musculoskeletal Medicine (BIMM)
- British Orthopaedic Association
- British Osteopathic Association
- British Sjogren's Syndrome Association (BSSA)
- British Society for Paediatric and Adolescent
Rheumatology (BSPAR)
- British Society for Rheumatology (BSR)
- British Society of Rehabilitation Medicine
- Chartered Society of Physiotherapy
- Children's Chronic Arthritis Association
- COT Specialist Section - Rheumatology
- Early Rheumatoid Arthritis Network (ERAN)
- Fibromyalgia Association
- Lupus UK
- MACP
- Marfan Association (UK)
- McTimoney
- National Ankylosing Spondylitis Society (NASS)
- National Association for the Relief of Paget's Disease
- National Osteoporosis Society
- National Rheumatoid Arthritis Society (NRAS)
- Podiatry Rheumatic Care Association
- Primary Care Rheumatology Society
- Psoriasis Association
- Psoriasis & Psoriatic Arthritis Alliance (PAPAA)
- Raynaud's and Scleroderma Association
- Rheumatoid Arthritis Surgical Society
- Royal College of Nursing Rheumatology Forum
- RSI Action
- Scleroderma Society
- Society for Back Pain Research (SBPR)
The musculoskeletal services strategy
The musculoskeletal services strategy was launch in 2006 by current Secretary of State for Health Andy Burnham MP.
The report
The report published - Joint working? An audit of the Department of Health's musculoskeletal services Strategy- was kindly supported by an initial grant from the British Society of Rheumatology as well as DePuy UK and Roche Products Ltd, who also sponsored the development and distribution of this press release.
References
1. Arthritis and Musculoskeletal Alliance. Joint working? An audit of the Department of Health's musculoskeletal services strategy July 2009
2. Department of Health. A joint responsibility: doing it differently - the musculoskeletal services framework. July 2006
3. Department of Health. Departmental Report 2008. May 2008
4. Hansard. 26 January 2009, Col. 84W
Source
NHS
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MLA
13 Feb. 2012. <http://www.medicalnewstoday.com/releases/156997.php>
APA
http://www.medicalnewstoday.com/releases/156997.php.
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Umbrella Association For Inflammatory Arthritic Conditions
posted by Mystral on 5 Aug 2009 at 3:41 amIt is one thing to 'put together' this umbrella for inflammatory arthritic conditions and another to actually 'do' summat about those conditions... What is being DONE? I see nothing further in the press, at all. So looks like this is a rather non-effective organisation. Hmmmmm. Pity, as such an organization is *needed.
Having myself been DX AS (ankylosinbg Spondyklitis) with more than 25 of the attendant pieces of the inflammatory jigsaw puzzle pieces (Reynauds; Sjogren's; IBD; Costo; Dysphonia; Dyphragia; Ahritis, shoulders, elbows, knees, ankles, feet; Tinnitus; list is too long...). So, whre are we?
In France such a condition comes under the 35 conditions that are termed long-term ailments are are treated by 100% health service care. In the UK? Ha. My first GP refused to refer me to a rheumatologist, saying that AS was incurable and it was a waste of public funds to refer me for an illness that had no cure nor relief! ('Do no harm' springs to mind!) I went through several years of agony, culminating in severe gut problems, gut problems exacerbated by the ubiquitous NSAIDs. I then changed GPs.
That change was fortunate for me, as it was discovered that I had secreting Adenomatous colon polyps, that on removal were deemed pre-cancerous - and this was the trigger event that sent me to seek better medical care.
I shudder at the level of medical care in the UK. So much of it is quite frankly below the levels of 'good practice'.
One 'wonders' IF this umbrella association is really going to achieve anything apart from 'jobs for the boys'.
Now, an organisation this IS doing positively good work is the Royal Bath Rheumatology Hospital, who hold two week long Residential Courses for AS sufferers. The two week courses run back-to-back throughout the year. Each patient is assessed and suitably placed in one of the courses. The courses are FREE to NHS patients. For patients outside the NHS service, the course is to be paid for. Access to the course is available via a referring letter from one's GP or rheumatologist.
Further information on the residential course is available on the Royal Bath Rheumatology Hospital website. See Ankylosing Spondylitis in the menue, click and scroll down for details.
It amazes me that these residential courses have been running for 20 years - but I have only JUST come to know about them! Rheumatologists are not referring nor are GPs, why? Simple, they don't know about them! Why? Probably because the PCTs are unwilling to fund patients to attend... So? This umbrella association can begin by addressing this appalling gap in information and get cracking in getting the residential course publicised in ALL the related rheumatology/arthrititis/autoimmune organisations - get the courses known about before they are ceased due to lack of attendance (I kid you not. Yes. Ceased *because insufficient patients know about them to keep them running!) I will add here, that only two such courses are running world-wide. One in Toronto, Canada and the other? Bath, UK. Bravo Bath.
We need ALL the help we can get in the sheer coping with this disease and ALL the attendant jigsaw pieces that come with this inflammatory arthritic condition.
AS is a beast of many parts, his name is legion!
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