Canadian Survivor Awarded "Pulitzer Prize" of Ovarian Cancer Advocacy Washington, DC
Main Category: Ovarian CancerArticle Date: 25 Nov 2004 - 18:00 PDT
Canadian ovarian cancer advocate Sandi Pniauskas received the "Spirit of Survivorship" award at the Ovarian Cancer National Alliance's seventh annual conference. Pniauskas received the top advocacy honor because of her consistent efforts to help the lives of others who are battling this often fatal disease.
OCNA Board member Deborah Bell presented the award and described how Pniauskas chose to radically change her life after her diagnosis. Bell said, "Sandi gave up a successful career and has devoted her time, as well as considerable resources, to learning about this disease that suddenly was changing her life. She now spends her time raising public awareness of ovarian cancer to help others who are diagnosed with cancer."
Pniauskas exceeded the awards criteria, "particularly as a person who has demonstrated the ability to direct positive energy, as a model for others, towards overcoming the disease and through her optimistic approach to inspire and teach community members."
Pniauskas advocacy efforts include:
� Coordination of "Dare to Dream for Ovarian Cancer," a nationwide Canadian ovarian cancer awareness event in 2003.
� Membership on the Breast/Gynecologic Cancer major fundraising committee and participation on the Community Advisory Committee at Princess Margaret Hospital at the University of Toronto, devoted exclusively to cancer research, treatment and education.
� Numerous presentations including one she made at the 2003 Canadian Cochrane Collaboration Third Annual Conference: "Patient and Practitioner Partnership - A Practically Perfect Combination"
� Submission in 2002 of an ovarian cancer paper for the Commission on the Future of Health Care in Canada. Out of tens of thousands of papers hers was the only one on ovarian cancer.
The "Spirit of Survivorship" award was named in honor of Cindy Melancon, a founder of the Ovarian Cancer National Alliance who passed away in 2003. When diagnosed with ovarian cancer in 1993, Melancon discovered there were no support groups for survivors. She founded "Conversations" an international newsletter which helped build the ovarian cancer community and the advocacy movement. Her spirit created a community of hope among cancer survivors.
The award is the highest honor in the ovarian cancer community. During Pniauskas' address to the audience, she emphasized the recognition and importance of the 'Spirit of Survivorship' award describing it as the 'Pulitzer Prize of Ovarian Cancer'.
The Ovarian Cancer National Alliance is a patient-led, umbrella organization uniting ovarian cancer activists, women's health advocates and health care professionals in the effort to increase public and professional understanding of ovarian cancer and to advocate for more effective diagnostics, treatments and a cure.
-more- 910 - 17th Street, N.W. � Suite 413 � Washington, DC 20006
Telephone: 202-331-1332 � FAX: 202-331-2292 �
http://www.ovariancancer.org
Contact: Elizabeth Denlinger (202) 331-1332 x 312 October 29, 2004
Visit our ovarian cancer section for the latest news on this subject.
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Canadian Survivor Awarded “Pulitzer Prize” Of Ovarian Cancer Advocacy Washington, DC
posted by Lori on 29 Jul 2006 at 12:59 amI have spent many years listening to my sister, Sandra Pniauskas, go on and on about how much she has done for the ovarian society. First, Sandra only has a high school diploma and it is scary that she is speaking as if she has a PHD or Medical License. Sandra did not leave her career to help others, she left way before she found out about having cancer. She was burned out and looking for a new challenge. Always trying to be # one is a very tiresome challenge! Unlike what Sandra may say in person, in print and online - she was not the only one who lost her mother - there were 4 other adult children involved and it impacted us all - not one worse or better than another - just different....woe me! It is interesting that she talks about cancer but is a closet chain smoker. When she was diagonosed with ovarian cancer, all 3 of her sisters were wanting to be of help, emotionally, spirtiually, whatever way we could. She shut us out. Instead, she chose to go online and have "online" strangers to speak to and complained about how her family wasn't there for her. Everyone in the family was/is waiting for her to let us in to love and help her. The other 3 girls in the family are/were very close and are very loving, giving and generous. One would wonder why Sandra chose strangers instead! We still discuss this today and are very confused and saddened. My best friend and sister, Linda, died of colon cancer in 2003. Sandra dramatizes everything by making it sound like she was an only person who has been effected...woe me. We all carry the sadness and pain but have the wonderful memories and continue our lives. Sandra was so busy with herself and her need for recognition that she was not even able to make the time or effort to spend with Linda during her terrible short time with cancer. Linda lived less than 20 minutes away. Myself and my other sister who live 3,000 miles away flew up to see our sister Linda many times during her stage 3 colon cancer - unlike Sandra's stage 1 ovarian cancer. When we came to visit, Sandra was "too busy" to come to the family functions. Curiously, her husband happily showed! Linda knew she was dying but didn't tell Sandra until she was in the hospital 4 days before she died because Sandra just couldn't look outside herself to love another family member and be there for them. She once told Linda "I can go to lunch with you but I will only talk about cancer." Well Linda was well balanced and wanted to only talk about cheery things as she knew she had cancer ...Dah!...In our sister Linda's memory, our Mother's honour, I want others to know the "real" Sandra. As well, Sandra was not a great person who volunteered when she was younger. I think she may have herself mixed up with her other sisters and what they do for society and how truly loving and kind they are. Not everyone is looking for fame/recognition but instead just to care about and for others. It is truly saddening that Sandra chose to be an outsider while all her other sisters love and care for each other. Even in the end, Linda hoped Sandra would be there for her. Didn't happen. Sad but true. Hope it eternal, we do hope someday to have the "old" Sandra back....
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