Hospital School Program Helps Demystify Cancer For Classmates Of Young Patients

Main Category: Cancer / Oncology
Also Included In: Pediatrics / Children's Health
Article Date: 25 Jul 2010 - 1:00 PDT

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In an elementary school classroom, students are seated on the floor in a circle to create a cozy atmosphere that encourages sharing and talking openly. One of the students has important information to share with his classmates. With the help of St. Jude Children's Research Hospital staff, he explains why he has missed so much school and why he sometimes has to cover his nose and mouth with a mask.

Treatment for cancer and other catastrophic disease can last months or years and often makes it impossible for young patients to keep up with their local school curriculum. Teachers in the St. Jude School Program Presented by Target help patients continue their normal educational activities while away from their local schools. They are also part of the health care team that provides opportunities to continue normal educational activities through homebound or hospital-bound educational services. In addition, the team provides school re-entry services to ease the transition back to the community school.

"We talk about these things at a level that the students understand," said Laurie Leigh, the school's director. "When kids don't know what's going on, they try to fill in the blanks and make up their own answers. It is important for us to put things in the proper context and demystify cancer."

Cancer is a big topic no matter the age, but for children returning to school after treatment, putting the experience into words can be especially difficult. Through the school's reintegration process, patients are supported by teachers and Child Life specialists to make the move easier. On request, sometimes employees visit the schools to talk with classmates about diagnosis, treatment and its side effects, and answer questions.

Some common misconceptions that St. Jude employees hear from patients are that cancer is contagious or that a child did something to cause the disease.

"Younger children have a lot of magical thinking about cause and effect," Leigh said. "It is sometimes hard for them to understand that cancer happens and that we don't know why it occurs."

Re-entry presentations are left to the discretion of patients and their parents. School and Child Life staffs work with families to decide what is covered in the talk, giving patients control over how much they want to share. Some children want to participate in the presentation, while others prefer to be absent from the classroom when St. Jude staff explains cancer and its treatment.

"This is the child's reentry, and we want to be aware and honor that," Leigh said. "The child is the one who has to be in that classroom and live that every day."

St. Jude Children's Research Hospital

St. Jude Children's Research Hospital is internationally recognized for its pioneering research and treatment of children with cancer and other catastrophic diseases. Ranked the No. 1 pediatric cancer hospital by Parents magazine and the No. 1 children's cancer hospital by U.S. News & World Report, St. Jude is the first and only National Cancer Institute-designated Comprehensive Cancer Center devoted solely to children. St. Jude has treated children from all 50 states and from around the world, serving as a trusted resource for physicians and researchers. St. Jude has developed research protocols that helped push overall survival rates for childhood cancer from less than 20 percent when the hospital opened to almost 80 percent today. St. Jude is the national coordinating center for the Pediatric Brain Tumor Consortium and the Childhood Cancer Survivor Study. In addition to pediatric cancer research, St. Jude is also a leader in sickle cell disease research and is a globally prominent research center for influenza.

Founded in 1962 by the late entertainer Danny Thomas, St. Jude freely shares its discoveries with scientific and medical communities around the world, publishing more research articles than any other pediatric cancer research center in the United States. St. Jude treats more than 5,700 patients each year and is the only pediatric cancer research center where families never pay for treatment not covered by insurance. St. Jude is financially supported by thousands of individual donors, organizations and corporations without which the hospital's work would not be possible. In 2010, St. Jude was ranked the most trusted charity in the nation in a public survey conducted by Harris Interactive, a highly respected international polling and research firm.

Source: St. Jude Children's Research Hospital

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