Research Examines The Biomedical Diagnosis Of Pain
Main Category: Pain / AnestheticsAlso Included In: Fibromyalgia; Psychology / Psychiatry; Veterans / Ex-Servicemen
Article Date: 18 Aug 2010 - 0:00 PDT
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Is the science of diagnosing pain causing a number of pain sufferers to defend their honor? Research out of the University of Cincinnati is examining the diagnosis of pain that evades scientific testing, and the additional emotional suffering that can result for the patient.
The research by Elizabeth Sweeney, a doctoral candidate in UC's Department of Sociology, was presented at the 105th annual meeting of the American Sociological Association in Atlanta. The paper, "Defining Reality: How Biomedical Researchers Determine the Existence of Pain," analyzed more than 20 articles randomly selected from the peer-reviewed international academic journal, PAIN ®, the official publication of the International Association for the Study of Pain.
Sweeney examined the journal's content to determine how pain is measured and defined in terms of type of pain, location of pain, its causes, severity, duration, response to treatment, methods of detection and symptoms. Because of these evidence-based diagnostic tests, the paper states that sufferers of chronic pain - conditions that frequently cannot be localized or pointed out on a scan or test - are often put in the position of defending the legitimacy or the reality of their condition.
Examples of these chronic pain sufferers of unexplained or "contested" illnesses can include patients with Chronic Fatigue Syndrome, Complex Regional Pain Syndrome (CRPS), fibromyalgia and Gulf War Syndrome.
"It is apparent from this research that the missing link in much of biomedical research is any viable attempt to understand the subjective experience of pain," Sweeney writes.
"A diagnosis, simple though it may seem, constitutes not only the legitimacy of one's illness, but also the validation of one's sanity and honor - evidence that the patient is not psychologically unstable and is not 'faking' it," says Sweeney.
The paper details that the journal, PAIN®, which for more than 30 years has focused on the study and research of pain, is considered one of the world's premiere sources of biomedical research on pain. The articles that were analyzed were published between May 2008 and May 2009.
Demonstrating the challenges that pain and chronic pain pose to Western medicine, Sweeney concludes that deconstructing biomedical research on pain will better pave pathways of understanding in diagnosing and treating chronic pain sufferers.
Source:
Dawn Fuller
University of Cincinnati
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Visitor Opinions In Chronological Order (3)
The degree of emotional suffering I have been subjected to by doctors has created a 2nd disabling condition.
posted by Margo on 30 Aug 2010 at 12:15 pmI am so thankful that someone has finally taken the time to study the issue of chronic pain patients having to constantly "defend their honor". I've been living with, wait, let me be accurate here, I've been existing with chronic pain since 1993.
I was only 26 years old at the time so I was told by one doctor after another that I was too young to be on pain meds. I'm now 44 years old and I still have to fight this battle to get adequate pain management. It seems like it would be a no-brainer that chronic pain patients are already dealing with depression brought on by the loss of jobs, lifestyle, hobbies,friends, etc. Many of us are dealing with severe anxiety brought on in part by the stress of dealing with these life changes, of not being able to support ourselves financially, fighting the system to get approved for SSDI and Medicare, etc.
How can doctors and other healthcare professionals not see what they are doing to us when we are forced to defend ourselves constantly and we are constantly having to jump through hoops to get the medication we need just to function at 50%?
What happened to "do no harm"? I have been subjected to a tremendous amount of emotional harm over the years by the doctors who were supposed to be helping me. They have totally destroyed my self esteem, exacerbated social phobia to a level I have never experienced before. I could write an entire book about the emotional issues I am now dealing with because of the way I've been treated by doctors over the past 18 years. I just hope that Elizabeth Sweeney will continue researching this topic.
I just stopped going.
posted by Simone on 31 Aug 2010 at 6:59 amMy journey started in 2004 with lesions on the left side of my brain. I was already a migraine sufferer so because the pains were different and more aggressive I went to the doctor. I was told the lesions were from migraines???? I was also told that my ANA test was positive for systemic autoimmune. Yet, my PCP actually said....why go looking for what is wrong. It will show its face later and you can deal with it then. Coming from a family of strokes, scleroderma and epilepsy...I was concerned but couldn't get a referral. This along with my serious digestive issues was becoming too much.
Beginning in 2008 I started feeling the fatigue and body pains. Lupus was suspected by my new PCP but a test showed him that it wasn't and he said he thought it was fibromyalgia. Also, osteo arthritis but again the yet new PCP would not give me a referral because it was rheumatoid arthritis?? Here it is 2010...I get tingling in my hands along with dizziness. I get rashes off and on and my blood pressure has gotten high ( 155/101 the highest) My body feels like someone beats me with a bat.....very soar. My headaches make one side of my face sag a bit which scares me. But, I have refused to go to the doctor to be blown off and given medicine instead of really finding out whats wrong. I guess doctors want you to be bleeding profusely, not breathing or having something broken so they can do something exciting.
My fear is that I have scleroderma, or lupus or something. The sagging in my face during a migraine almost feels like warnings that unless my chin is dragging on the floor doctors feel I am just being dramatic. I just dont go anymore....I leave my appointments depressed....the doctors don't even seem to investigate...just pills, pills, pills.
Psychogenic Pain is Still Real
posted by aeiou on 13 Sep 2010 at 11:40 amMargo, you should consult a psychiatrist with a track record for compassion. Wait... don't get offended. If you've been jacked around or told you're imagining your pain, if you're depressed and socially limited, being told to see a shrink might sound like another offense. I assure you, it's not. Hear me out... and I hope others hear this also, including some heart-dead PCPs out there. Psychiatrists are medical doctors who specialize in the mind and emotions, which contrary to the historical western view, ARE part of the whole being.
Psychogenic pain is REAL PAIN, no less valid than any other, and more likely to be diffuse and difficult to identify. It may not be the ONLY source of your pain, but if you've been put through the ringer for years, why would you NOT be experiencing effects of that kind of chronic anxiety and disregard? You would be well served to find a psychiatrist to help YOU understand the effect of brain chemistry on other body systems, give you some tools to put you back in charge of what you can control, and prescribe as necessary to aid you in that regard.
Psychogenic pain isn't imagined or faked. One thing leads to another. Stress causes high blood pressure, heart attacks, migraines, immunodepression, etc. etc. Don't discount this angle, and don't apologize for it. Get it addressed honestly. It may not resolve all your hurt, but you've obviously already accepted that some discomfort is probably going to be a part of your life. Find a psychiatrist to help you get this aspect under control, and if you get a good one, you'll probably also find yourself a partner in dealing with your other doctors. The medical profession is coming around, but wayyy toooo slowwww. Validation of psychogenic pain is going to have to be driven by the people who suffer from it. Go girl!
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