Cystic Fibrosis Foundation Launches New Web Site

Main Category: Cystic Fibrosis
Also Included In: IT / Internet / E-mail
Article Date: 03 Nov 2006 - 0:00 PDT

email to a friend   printer friendly   opinions  

The Cystic Fibrosis Foundation, a nonprofit organization devoted to finding a cure for the life-threatening, genetic disease, announced today the launch of its newly designed Web site (http://www.cff.org) as part of a new overall visual identity.

"Knowing that our Web site is one of our most important connections to the CF community, we upgraded it to ensure that patients, families and volunteers will find the best and most up-to-date information available about this disease," said Robert J. Beall, Ph.D., president and CEO of the CF Foundation. "Together we will continue the fight to find better therapies and ultimately a cure."

Cystic fibrosis, which affects about 30,000 people in the United States, occurs when the defective CF gene causes the body to produce abnormally thick, sticky mucus that clogs the lungs and can result in fatal lung infections. The median predicted age of survival for people with CF is nearly 37 years old.

Features of the new Web site include:

-- Enhanced navigation tools to make searching easier

-- Compelling new images of real patients, physicians, researchers and children in the CF community

-- New resources for learning about cystic fibrosis

-- CF news and announcements

-- Expanded information on cystic fibrosis research and clinical trials

-- Information about volunteer opportunities

-- Profiles of people with CF such as Camiah McNeal, who, at 11-years- old, became the youngest recitalist to play at Chicago's Orchestra Hall

In 2007, the CF Foundation plans to add new features and content, including a community section that will have customized information for people who are newly diagnosed, parents, children, teens and adults with CF, as well as for volunteers.

About the Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation, headquartered in Bethesda, Md., is the leading organization in the United States devoted to cystic fibrosis, a life- threatening genetic disease that affects about 30,000 people nationwide. The CF Foundation has more than 80 chapters and fund-raising offices nationwide and supports a network of more than 115 Foundation-accredited CF care centers, which provide patients and families with vital treatment and other resources.

The CF Foundation has been recognized by publications such as Smart Money as being one of the most efficient organizations of its kind. In 2005, nearly 90 percent of every dollar of revenue raised was available for investment in CF research, care and education programs. The National Institutes of Health and many prominent publications, including Forbes and USA Today, have heralded the Foundation's innovative business model, which fuels drug discovery and development programs. For more information, visit http://www.cff.org.

Cystic Fibrosis Foundation
http://www.cff.org

• Additional
• References
• Citations