Patient's Worldwide Bill Of Rights For Eating Disorders Demands Proof Of Results
Main Category: Eating DisordersAlso Included In: Psychology / Psychiatry; Mental Health
Article Date: 12 Nov 2006 - 0:00 PDT
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An international professional society has issued a patient's bill of rights for the treatment of eating disorders, conditions that affect an estimated 30 million Americans, most of them young women. For 2 million, symptoms will progress to full-blown anorexia nervosa and approximately 10 percent will die from the disease. Treatment is often complex and typically involves not only the patient, but friends and family as well.
The Academy for Eating Disorders (AED), which created the bill of rights, warns that in recent years treatment programs have flourished which can make choosing among treatment options difficult for parents and patients. Dr. Cynthia Bulik, AED fellow, distinguished professor of eating disorders in the department of psychiatry and director of the Eating Disorders Program at the University of North Carolina at Chapel Hill School of Medicine, said patients and their parents should know three things:
-- Where can I get a thorough evaluation by knowledgeable providers? The first step is a thorough assessment by qualified professionals who can help the patient and family decide the best level of care, because not all patients require inpatient treatment. This assessment should cover medical, psychological and social aspects of the illness.
-- What is the background of the treatment providers? Anorexia nervosa can have serious physical and psychological complications that should be treated by professionals who have advanced clinical training and experience in treating eating disorders.
-- What is the treatment plan and what evidence is there that it has the best likelihood of being successful? Patients and their parents need to understand what treatment involves and how progress will be evaluated. Often referred to as "evidence-based medicine," interventions should be based on results of scientific studies, published in peer-reviewed medical journals. "When families are paying thousands of dollars a day for inpatient or residential treatment, they should feel empowered to ask for data showing that the services they are paying for are based on sound scientific evidence and have been shown to be effective. Given the seriousness of these illnesses, make sure that appropriate medical coverage and psychological treatment are provided," cautions Dr. Bulik.
The "Worldwide Charter for Action on Eating Disorders," the patient's bill of rights for treatment of eating disorders developed by the AED, also addresses the need for the worldwide treatment community to provide high quality and fully-funded care. For more information, visit http://www.aedweb.org
"There is certainly room for a spectrum of treatment approaches, but patients and families need to be fully informed about their options," said Eric F. van Furth, PhD, FAED. Dr Eric van Furth is the clinical director of the Centre for Eating Disorders Ursula in Leidschendam, The Netherlands as well as president of AED.
About UNC EATING DISORDERS PROGRAM
The Eating Disorders Program at the University of North Carolina at Chapel Hill offers a comprehensive specialized approach to the treatment of anorexia nervosa, bulimia nervosa, and related conditions for individuals of all ages. The mission of the program is to provide the most current and state of the art evidence-based treatments to help individuals suffering from eating disorders to achieve a lasting recovery. This is accomplished through intensive inpatient, partial hospitalization and outpatient services.
About AED
The Academy for Eating Disorders is an international, transdisciplinary professional organization with over 1,400 members worldwide. The AED promotes excellence in research, treatment and the prevention of eating disorders. The AED provides education, training and a forum for collaboration and professional dialogue. Please visit http://www.aedweb.org for more information on AED, eating disorders, and the Worldwide Charter for Action on Eating Disorders.
University of North Carolina at Chapel Hill School of Medicine
101 Manning Dr., 6002 East Wing
Chapel Hill, NC 27514
United States
http://www.med.unc.edu
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Visitor Opinions In Chronological Order (1)
Denied Treatment For Anorexia
posted by mark shumaker on 6 Jul 2009 at 10:40 pmI am a 57 y/o male suffering from anorexia binge-purge sub type, I have comorbid psychiatric symptoms, e.g.: major depression, personality disorders, gender identity disorder, I have been suffering from anorexia on and off since the age of 19-20 yrs. old, for the last 4 or 5 yrs. it has become progressively worse, as of this writing I’m eating only lettuce and walking 6 miles daily, my caloric intake is 150 kcals. per day and no more, I’ve lost a considerable amount of weight, I’m 6'4" and weigh 145lbs.
My goal is 99 lbs. I have a private treatment team, a psychiatrist, case mgr., social workers, community support team who are at their wits end trying to find a treatment facility for me. I’ve been denied treatment from the university of north Carolina at chapel hill, they treat males, but not me, NC Medicaid refuses to pay for out of state treatment, I’m on the verge of stopping eating altogether, all I want to do now is die, I cannot stand this any longer, I’ve totally given up on the notion of receiving any help.
Ironically I live just 8 mi. from unc@chapel hill, I am not welcomed there, I’ve given up all hope of ever beating this insidious disease, and given up on medical care, with the hopes of dying soon, I’m sorry my family has to see me perish this way, when there's a treatment facility just down the road, they(unc) do not care, I did have hope at one time, but it's gone now.
Thank-you,
Mark shumaker
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