Who Receives A Kidney Transplant First? Fairness Of Kidney Allocation Could Shake Public Trust
Main Category: Transplants / Organ DonationsAlso Included In: Urology / Nephrology
Article Date: 03 May 2007 - 12:00 PDT
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While the field of transplantation is quite young, substantial advancements and success have led to the current imbalance between the supply of organs and the demand for them. The United Network for Organ Sharing (UNOS) coordinates the nation's transplant system through a point system based primarily on wait time, sensitization and HLA matching.
When a match occurs, the kidney is offered to the person at the top of the national list. A recent editorial in the American Journal of Transplantation discusses the fairness and equality in kidney allocation, particularly as UNOS is reevaluating its allocation system and will receive recommendations from a sub-committee this year.
"The issue of the allocation of deceased donor organs is not new, and there have been two somewhat conflicting philosophical approaches," says author Ron Shapiro, M.D. One states that organs are scarce resources and should be allocated preferentially to the lower risk candidates to maximize the longevity of the transplanted organ. The second strives to maximize access for all potential candidates and utilizes waiting time as an important criterion. These correspond to the "utility" versus "equity" views.
Concerns have been raised that there will be less equality in the new allocation system, even though it should be emphasized that no formal proposal has been made to date. The debate is only further complicated by the reality that deceased donor kidneys are variable in their quality - while patients, to a large extent, rely on their doctors to make appropriate decisions for them regarding candidacy and allocation.
Patients have an expectation that the system will be fundamentally fair, and any modification to the system that may be perceived as unfair runs the risk of undermining patient confidence. "Transplantation is the only technologically advanced field of medicine that is totally dependent on public understanding and support, for without donors and recipients, transplantation would simply not exist," says Shapiro.
The research and viewpoints expressed in the article are those of the author and do not reflect the opinions of the journal or the affiliated societies.
This study is published in the May issue of American Journal of Transplantation. Media wishing to receive a PDF of this article may contact medicalnews@bos.blackwellpublishing.net.
You can also review the Emory Algorithm from a five-year Emory University study which is being considered as part of a new kidney allocation system. Read the study in the October 2006 issue of the American Journal of Transplantation.
The American Journal of Transplantation serves as a forum for debate and re-assessment and is a major new platform for promoting understanding, improving results and advancing science in this dynamic field. Published monthly, the journal provides an essential resource for researchers and clinicians around the world. For more information, please visit: www.blackwell-synergy.com/loi/ajt.
The American Society of Transplant Surgeons is dedicated to excellence in transplantation surgery through education and research with respect to all aspects of organ donation and transplantation so as to save lives and enhance the quality of life of patients with end stage organ failure. For more information, please visit www.asts.org.
The American Society of Transplantation is dedicated to advancing the field of transplantation through the promotion of research, education, advocacy, and organ donation to improve patient care. Please visit www.a-s-t.org to learn more.
Blackwell Publishing is the world's leading society publisher, partnering with 665 medical, academic, and professional societies. Blackwell publishes over 800 journals and has over 6,000 books in print. The company employs over 1,000 staff members in offices in the US, UK, Australia, China, Singapore, Denmark, Germany, and Japan and officially merged with John Wiley & Sons, Inc.'s Scientific, Technical, and Medical business in February 2007. Blackwell's mission as an expert publisher is to create long-term partnerships with our clients that enhance learning, disseminate research, and improve the quality of professional practice. For more information on Blackwell Publishing, please visit www.blackwellpublishing.com or www.blackwell-synergy.com.
Visit our transplants / organ donations section for the latest news on this subject.
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Transplantation System Broken & Corrupt.
posted by Robert F. Hickey Ph.D. on 4 May 2007 at 9:26 amDr. Shapiro's comments regarding fairness and equity in the US transplant system will provoke mixed reactions. First, the system today as operated by the UNOS/OPTN is unfair, lacks equity, and is corrupt. The most glaring failure is the system is not based on patient centered care. The focus for the UNOS/OPTN and the 58 OPO across the country is money. No one in need of a transplant ever has an organ 'donated' to them. Those organs are sold! See the Denver Post 10/19/04. Examine the IRS form 990 tax records for the most recent tax year available at guidestar.com. The total amount of revenue generated by the UNOS/OPTN/OPO triumverate last year is in excess of $1.45 billion. These revenues are generated before any patient arrives at the OR doors. Then, add to that figure the $8,000.00 to $15,000.00 organ acquisition fee collected by most transplant centers. The system is driven by money.
Second, there is no equity in the system. Look at the waiting times for a kidney in Florida, a few weeks to a few months, as opposed to Colorado which takes years. The re-authorization of NOTA in April, 2004 was intended to more equitably allocate organs across the country. The new rules are generally ignored. The Kaiser-Permanente debacle in Northern California demonstartes the tenuousness of position on the waiting list. All Kaiser patients transferred from their contract transplant centers to the new Kaiser program lost their position status on the list. All showed up as new assignees to the list even when they had previously been waiting for years.
The UNOS/OPTN/OPO stock in trade regarding their public pronouncements is misinformation and deceit. Such is my experience, that of the patients with whom I work, and that of John Fung, M.D., former UNOS board member testifying before a Congressional Field hearing in August, 1998. That pattern of deceit is demonstrated in the UNOS/OPTN/OPO pronouncements every day.
Potential 'donors' are never told their organs will be sold. They are never told those fees go to support a huge and unnecessary bureacracy which supports huge real estate holdings, unjustifiable salaries to non-medical paper pushers, or that they and their families will be exposed to goulish pressure from the OPO coordinators near the time of their death. The Los Angeles Times has published 28 investigative pieces in the past 18 months about abuses within the system as operated by the present private contractor. The most recent articles deal with 2 patients in California, San Luis Obispo and Fresno, being declared dead prematurely in one case and an attempt to rush death in the other just within the past 2 months.
Our system is broken and deadly. It will be even more so if the proposal now being discussed within the UNOS/OPTN/OPO are ever enacted. Life Years From Transplant (LYFT) as it is being referred to is a new acronym for death.
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