Compassion in Dying and the award-winning patient information website http://www.healthtalkonline.org are holding a seminar Towards shared decision making at the end of life on Thursday 20th September. New research entitledHow do people approach decision making at end of life? will be launched at the seminar. Delegates including representatives from the Motor Neurone Disease Association and The Royal Marsden London will discuss the importance of shared decision making at the end of life, from both the patient and healthcare professional perspective.

Dr Suzanne Shale, author of How do people approach decision making at end of life said:

"While dying patients plan their financial and legal affairs as a matter of course, they are often far less aware of the sorts of medical decisions they might need to make as they die. This means they may not be thinking about, and equally importantly, are not discussing with people close to them, how they want to be cared for. Many patients interviewed had not considered their treatment preferences in detail or really explored them with family, and there was limited understanding of the purpose and legal validity of Advance Decisions. This is a great pity, because dying people also spoke a lot about wanting to spare their loved ones distress at the end. Not knowing what treatment a dying person would want can be very upsetting for people close to them. Given current and evolving medical sophistication, it is important that dying patients tackle the question of how they want to die."

Sarah Wootton, Chief Executive of Compassion in Dying said:

"Dr Shale found that patients got their information from three main sources; health professionals, friends, and their own experiences of the deaths of loved ones. Compassion in Dying can work with health professionals to ensure that they are equipped to deal with difficult conversions about end of life, as well as ensuring our free information line is a useful resource for patients wanting more information and support."

The seminar and research launch is invitation only, but the research will be made available directly after the seminar.