UK charity Action for M.E.'s latest booklet, Newly diagnosed with M.E./CFS, has been endorsed by the National Institute for Health and Care Excellence (NICE).
Aimed at patients and professionals, the booklet provides information and advice about the diagnosis, symptoms and management of M.E. There is also guidance to help patients be an active partner in their own care, suggestions for questions to ask GPs, and information about existing guidelines for health professionals.
Sonya Chowdhury, Chief Executive, Action for M.E., says: "We're delighted that our booklet for those newly diagnosed with M.E. has been endorsed by NICE. We created the booklet to empower people with M.E., setting out the information, support and signposting they need to make informed decisions about managing this complex and challenging condition. We hope that patients will share it with their GPs, and that GPs will share it with their colleagues."
Newly diagnosed with M.E./CFS booklet from Action for M.E.
The endorsement by NICE confirms that the booklet supports some of the recommendations relating to diagnosis, shared decision-making and general management in the NICE guideline for M.E./CFS.
Newly diagnosed with M.E./CFS was developed in consultation with healthcare professionals and the charity's patient and carer reference group, including Susan Muskett, who has M.E. Susan says: "I would give this booklet to someone I know who has just been diagnosed with M.E. as it's a good introduction to the symptoms. The part of the resource I found most helpful was about not being alone, with easy-to-read tips from people with M.E."
Dr Gregor Purdie, the charity's joint medical adviser, says: "Healthcare professionals and people with M.E. alike tell us they would like more information and support about the diagnosis, symptoms and management of M.E., and this resource is intended to do just that. By offering evidence-based information and support, Action for M.E. hopes to improve patient care for all those affected by M.E. in the UK."
Action for M.E. offers support and information to anyone affected by M.E., including carers and family members. Visit www.actionforme.org.uk or call 0117 927 9551.