Statement On The Baby RB Case - Muscular Dystrophy Campaign
Muscular Dystrophy Campaign's statement on this case:
The Baby RB case has highlighted issues which, although rarely brought to the attention of the media, can affect families coping with muscle disease. The Muscular Dystrophy Campaign recognises the tragic situation that Baby RB's parents find themselves in and that unfortunately the resolution of this case is devastating for all parties involved.
Congenital myasthenic syndrome is the collective term for a group of inherited congenital disorders that affect the way messages from the nerves are sent across to the muscles. Symptoms normally start in the first years of life with varied disability ranging from mild to severe muscle weakness.
The Muscular Dystrophy Campaign is here to provide support for all families affected by muscle disease through our freephone information support line and care team. We also continue to invest over £1million each year into pioneering research to find treatments and cures for muscle disease.
The Muscular Dystrophy Campaign
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